Mental well-being and burden in caregivers of patients with spinal muscular atrophy

Takeaway

  • Attention should be paid to the well-being of the primary caregivers of patients with proximal spinal muscular atrophy (SMA) and they should especially be motivated to keep participating in social/leisure activities.

Why this matters

  • Understanding the pressures on caregivers of patients with SMA is necessary for the development of effective interventions to support them.