Patients in a locked in state from amyotrophic lateral sclerosis can have a high quality of life

Takeaway

  • There are subgroups of patients who are in a locked in state (LIS) from amyotrophic lateral sclerosis (ALS) with high quality of life (QoL) and who favor the use of life-prolonging treatment they use.

Why this matters

  • Many healthy people anticipate that living with LIS is a life in misery, however these data suggest that this is not necessarily true and that patients from this population can be happy and have good psycho-social adaptation to their condition.