Probing the mortality and the underlying causes of death in Idiopathic Intracranial Hypertension


  • There was a 50% increased risk of all-cause mortality in patients with idiopathic intracranial hypertension (IIH). The most common underlying causes of death were suicide, accidents and medical/surgical complications.

Why this matters

  • IIH has a low incidence in the general population but rises to 19 per 100,000 cases in obese women aged 20–44 years.

  • A recent Cochrane review was unable to find sufficient evidence to determine best-practice management strategies for IIH.

  • Although IIH is not considered a fatal condition, it is reasonable to believe that the severity and complexity of IIH symptoms may lead to death. This is the first, large cohort investigation into the mortality of people living with IIH.